The dementia community is larger than you might imagine:
Within the United States, more than 6 million people are living with dementia.
These numbers are expected to rise dramatically as life expectancy increases and as the greater impacts of COVID-related dementias are felt.
There are 15 million friends, family members, and caregivers to people with dementia.
The question, then, is not will you serve this community, but will you serve it well? Does your staff understand the behaviors they encounter? Are they welcoming to this vulnerable group? Do they feel empowered to provide services and programs that improve quality of life?
Contrary to the current cultural narrative, people with dementia can lead lives filled with love, meaning, connection, and even growth – if they are given the support and community to do so.
Public libraries are perfectly positioned to serve people with dementia and give them the support and resources they need.Public libraries are embedded in almost every American community, offering a unique opportunity to welcome and engage the 81% of people who have dementia who are still living at home, as well as the people who care for and about them. Libraries can also actively serve and enrich the experiences of people living in memory care and other facilities. There are no barriers to access in libraries, and no stigma to walking through our doors.
One way to ensure this happens in your library is to practice an emerging gold standard for dementia care called person centered care. First promulgated by Dr. Thomas Kitwood in the 1990’s, it has now become accepted practice. The provides these 5 recommended guidelines:
Treat the person with dignity and respect
Understand their history, lifestyle, culture and preferences, including their likes, dislikes, hobbies and interests
Look at situations from the point of view of the person with dementia
Provide opportunities for the person to have conversations and relationships with other people
Ensure the person has the chance to try new things or take part in activities they enjoy.
Libraries can design programming and provide individualized Reader’s Advisory services for their patrons living with dementia that demonstrate person-centered care in action. Samples of programs and draft reader’s advisory forms can be found below under resources.
Libraries across the nation are also becoming involved in the movement and are starting to either offer in house or bring book and reading programming to already existing Memory Cafes. Again, more resources can be found below.
Another stigmatizing misconception is that people living with dementia can no longer enjoy books and reading. However, research, and anecdotal experience of librarians across the country, demonstrate just the opposite. While reading may be different for those living with dementia, they can still benefit from carefully selected materials from both the adult and children’s non-fiction collections. Please see some corroborating journal articles in the Reading & Dementia section below.
Libraries should never forget their patrons with memory loss. We hope these ideas and resources will help to enable you to start bringing library services to this deserving, but often underserved, segment of you community.
Please feel free to join LSDA (there are no fees) by subscribing to our (hosted by Library Juice Academy), following our , and joining our . These are forums to exchange information, provide training, and support one another on the journey of serving the dementia community.
Benigas, J. and Bourgeois, M. (2011). Evaluating oral reading and reading comprehension in patients with dementia: A comparison of generic and personally relevant stimuli, 2(1): 41-54.
Billington, J. (2013). A literature-based intervention for older people living with dementia. Perspectives in Public Health 133(3):165-73.
Bourgeois, M. (2001) Is reading preserved in dementia? .
Claridge, G. and Rimkeit, S. (2018). Can she still read? How some people living with dementia responded to the reading experience. Extensive Reading World Congress, 4, 266-275.
Dai, J. et al. (2021). Library services enriching community engagement for dementia care: . Journal of Librarianship and Information Science.
DeVries, D. et al. (2019). The impact of reading groups on engagement and social interaction for older adults with dementia: A literature review. Therapeutic Recreation Journal. 53(1): 53-75.
McNicol, Sarah (2023). , Facet Publishing, 2023, ISBN 978-1783305971
Rimkeit, S. and Claridge, G. (2017). Literary Alzheimer’s, A qualitative feasibility study of dementia-friendly book groups. New Zealand Library & Information Management Journal. 56(2):14-22.
Wilson, R., et al. (2021). . Neurology, 97:e922-e929.
